Why I need to get a wheelchair

I have no doubt that there will be people who will look at the title of this post and think, “Why on earth would you get a wheelchair? You can walk. I’ve seen you!” Well yes, that is true, I can still walk. Sometimes. Kind of. That’s why I feel I should explain in advance, and hopefully avoid some questioning later.

Open letter to Maria Miller

FAO: Maria Miller

Dear Maria Miller,

Please engage with us re: DLA and ESA reforms

I am a disabled and long-term sick citizen of this country. Prior to becoming incapacitated I worked hard, and although currently unable to work in paid employment I still contribute to society in various ways, including by raising my children one of whom has very special needs. 

I wish to echo the sentiments of an open letter which has been addressed to you, and I include the full text here:

Dear Maria Miller, 

Before I start, I have a small request. When you talk about “The Disabled” could you please add “The Sick” in there sometimes? Only, millions of people with long term illnesses often face the greatest barriers to work but are rarely mentioned, if considered at all.

You see, I first started lobbying ministers about ESA back in 2009 and was surprised to listen to a half hour speech by the then disabilities minister Jonathan Shaw that failed to mention illness once. Obviously with political and business will it is possible to modify workplaces to facilitate the lives of the blind or deaf or immobile in employment. It’s just not so easy to modify for exhaustion or pain or vomiting. A few months later I met with Mr Shaw who made it clear that he didn’t really know anything at all about the issues faced by those who are suffer from long term variable or degenerative conditions.

It seemed a little that way when you, Maria “answered” questions online at Guardian Money. Of 250 questions, you replied to 6, often with answers that were strangely irrelevant; you didn’t seem sure whether the over 65s would be able to continue claiming DLA? You didn’t seem to know which research your own department had based its conclusions on? I read your response to our little online chat this morning;

Miller says she believes that the rising unease will settle once the full details of the proposed changes become clear and is convinced that much of the anger has been triggered by a failure to understand the government’s objectives.

“I often hear concerns that are based on a lack of detailed information of what we are talking about in terms of our reforms. People need to get the facts rather than speculation,” she says. “The anxiety can often be based on the fact that we are dealing with very complex benefits. The government is going to reform and simplify the whole system.”

Oh dear, dear, dear. This really isn’t the way to go at all. I am a fairly moderate (and I like to think reasonable) campaigner, but I can already hear the howls of outrage from every corner of the UK as people read that their brains are now being called into question as well as their disabilities.

You see we don’t have much else. We can’t get about much, we might live in terrible pain or despair. We may have had to give up our hobbies or our dreams, but we like to think that we can still use our brains. We have little still available to us, but we can analyse, dissect and appraise. Of the campaigners I know, one is a PHD student, two are lawyers, one is the CEO of a major charity and I myself have a degree. We’ve read the green papers or white papers or CSRs in detail and have an excellent grasp of what changes will mean. We’re just not always sure you’ve done the same.

I’m sorry to shout the next bit but I’m running out of ways to make the next point in a way you might notice :

SICK AND DISABLED PEOPLE ARE NOT AGAINST ALL REFORM – FAR FROM IT.
WE SIMPLY WANT TO ENGAGE WITH YOU TO ENSURE REFORM IS SUCCESSFUL.

We hear very often that you listen to and consult with health and disability groups over your current proposals, but I can find little evidence of this.  These charities have written to you asking to meet, whilst other leading charities wrote to the Times begging you to listen and engage. You’ve never contacted myself or other cyber-campaign groups like the Broken of Britain.

If you press ahead with changes to ESA and DLA as they stand, you will find a Poll Tax/Iraq sized albatross hanging around your necks. There are some very damaging proposals in both reforms and it is in no way dramatic to state that they will cause great hardship, poverty, distress and even death. Why not iron things out while it’s still not too late? Why not change things in a way that will achieve your supposed objectives? This is an issue that gains enormous support and coverage online – my own blog has gone from nowhere to become the 23rd highest ranked political blog in the UK in just 4 months and it is only a matter of time before stories of destitution and suicide make this a national issue that won’t go away.

Many campaigners can only conclude that the entire exercise is a cost cutting measure. Can you blame them when George Osborne announced how much he would save through these measures before a single reassessment had even taken place? The rhetoric used in this debate has often being accusatory and intimidating “Cheats mugging the country” “Skivers and Scroungers” This has often been fuelled by your own press releases and really needs to stop if we are ever to have a reasoned debate on the issue.

All I can do is ask, yet again, that you stop and listen. When something is truly unjust, those who fight it will win in the end. Surely it is better to do it together and with respect than through endless Daily Mail headlines and suffering?

Please understand that although the words above are not my own, I fully agree with them and therefore this communication is on my own behalf.

I look forward to your response.

Julian Yon

Constituents of Ms Miller (Basingstoke) can email her at:

millerm@parliament.uk

Ministerial correspondence can be sent to:

ministers@dwp.gsi.gov.uk

Edit: The original author of the letter is Sue Marsh therefore please ensure you have her permission to reuse for anything other than its intended purpose.

Brain fog

Some people on Facebook have been unnecessarily argumentative with me recently, and taken offence at what they perceive to be me “putting words in their mouth”, or “not thinking”. This was my response to one of them:

Every inaction…

So today I’m going to have a camera stuck down my throat, and another shoved… somewhere else. I’m trying not to dwell too much on the fact that had this been done eleven years ago, when I first went to the doctor with concerns about my guts, then maybe I could have been spared at least some of the problems that have followed. But it’s hard not to.

It’s all in the blend

Approximately two months ago I was afflicted with Bell’s Palsy. I’d never actually heard of it before. Basically something happens to cause damage and/or inflammation to the facial nerve, leading to paralysis on one side of the face.

It’s amazing how much you take your nervous system for granted; or at least, I did.

BBC takes homeopathy bias too far

For the first time, I have felt it necessary to write a complaint to the BBC.

Last night (22/02/10) just after 1930 on News24 an interview was broadcast on the subject of homeopathy. The interview was highly biased towards advocacy of homeopathy, despite the fact that it has no scientific basis and is proven to be ineffective. Of particular concern was the claim that homeopathic treatment could cure cancer. This claim was repeated an hour later in another interview, and not accompanied by any disclaimer. This is not just misleading but dangerous and irresponsible. Under the Cancer Act 1939 (specifically §4) it may even be criminal. It is utterly unacceptable, and I would like to know how you intend to correct this.

The interview itself is here, and it was also quoted as fact later on in the evening.

Increased Resolve

In my earlier post I expressed that I might “even organise a campaign or two of my own. Although if I’m honest that’s more likely to be next year.”

Reading that back made me feel a tad uncomfortable. I could hear myself saying something meant genuinely, but ultimately meaningless. “Tomorrow,” he said, “I’m going to quit procrastinating.”

Unresolved Issues

This year, I didn’t make any New Year resolutions. I’ve done it some years, and I find it’s mostly a case of setting yourself up for a fall. With an arbitrary start point (Jan 1) and an arbitrary deadline (Dec 31) there is pressure from beginning to end. But over the midwinter period I had a bit of a think about my priorities and I have some ambitions for the coming months:

The Perl of Prestatyn

I’ve been thinking for a little while that I should try to give my brain some more appropriate exercise. All the thinking I’ve been doing for months has been survival stuff, or introspection. In the end, I’ve ended up with my head hurting but I’ve not developed. At this rate I’m going to end up 30 going on 70 by the end of the year. To get fully better I must get my head working again!

Why going back to church is hard

It’s no secret that we’ve hardly been to church for the last year or so. There have been a whole succession of reasons for this, there’s no one single cause. For instance, our car has decided to object to the cold weather. But even if it didn’t, Sally seems to be working most Sundays and it can take both of us to deal with E at church sometimes. And this period of absence began with both of us suffering health problems, which are not yet resolved. When we have been able to join in worship, it’s not always been at our own church, which means that we’ve seen very little of our Christian family.